The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with the disease the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment and ensuring access to high-quality, specialized care.
The mission of the Cystic Fibrosis Foundation is fueled by a dedicated group of scientists, caregivers, donors, volunteers and people with CF and their families who are united by a common goal: to find a cure for this devastating disease and help those with CF live longer, healthier lives.
Our approach to curing cystic fibrosis and caring for those affected by the disease is three-fold.
Research: We fund more innovative, groundbreaking CF research than any other organization in the world.
Care: We provide expert care for people with CF through our nationwide network of accredited care centers.
Support: We help people with cystic fibrosis and their families get the tools and support they need to lead healthy, productive lives, today.
Through dramatic improvements in treatment and care, the Cystic Fibrosis Foundation is adding tomorrows for people with the disease.
A few decades ago, most people with CF didn’t live long enough to attend elementary school. Today, people with the disease are graduating from high school and college, pursuing careers, getting married and starting families of their own.
- The life expectancy of someone born with CF has doubled in the last 30 years. Today, many people with CF are living into their 30s, 40s, and beyond.
- Nearly every CF drug currently available was made possible through Foundation support.
- Once considered exclusively a childhood disease, approximately half of all people living with CF today are over the age of 18.
What is Cystic Fibrosis?
Cystic fibrosis is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time.
In people with CF, a defective gene causes a thick, sticky buildup of mucus in the lungs, pancreas, and other organs. In the lungs, the mucus clogs the airways and traps bacteria leading to infections, extensive lung damage, and eventually, respiratory failure. In the pancreas, the mucus prevents the release of digestive enzymes that allow the body to break down food and absorb vital nutrients.
Symptoms of CF
People with CF can have a variety of symptoms, including:
- Very salty-tasting skin
- Persistent coughing, at times with phlegm
- Frequent lung infections including pneumonia or bronchitis
- Wheezing or shortness of breath
- Poor growth or weight gain in spite of a good appetite
- Frequent greasy, bulky stools or difficulty with bowel movements
- Male infertility
For more information about cystic fibrosis and the work of the Cystic Fibrosis Foundation, please visit www.cff.org.